The National Coordinating Center for the Regional Genetics Network (NCC) is excited to launch the first annual Public Health Genetics Week (PHGW)! The goal of PHGW is to increase awareness and celebrate the efforts of the public health genetics system. To help us celebrate the week, visit our PHGW themes page and download our social media toolkit to participate across your social media platforms.
NCC would like to thank the following individuals for being members of the Public Health Genetics Weeks Small Group, without whom this week would not have been possible.
- Lila Aiyar, MS, CGC, Western States Regional Genetics Network
- Mat Edick, PhD, Midwest Regional Genetics Network
- Ridgely Fisk Green, MMsC, PHD, Centers for Disease Control and Prevention
- Cynthia Hinton, PhD, MS, MPH, Centers for Disease Control and Prevention
- Alisha Keehn, MPA, National Coordinating Center for the Regional Genetics Networks
- Soohyun Kim, MPH, CPH, Health Resources and Services Administration
- Joel Lopez, National Genetics Education and Family Support Center
- Megan Lyon, MPH, National Coordinating Center for the Regional Genetics Networks
- Kimberly Noble Piper, RN, BS, CPH, CPHG, Iowa Department of Public Health
- Sikha Singh, MHS, PMP, NewSTEPs
- Kristi Wees, MS, Mountain States Regional Genetics Network
The mission of the National Coordinating Center for the Regional Genetics Networks (NCC), the seven Regional Genetics Networks (RGNs), and the National Genetics Education and Family Support Center (Family Center) is to increase access to genetic services for medically underserved populations.
We have many focus areas. They are:
- Genetics and Genomics Education
- Healthcare Access and Financing
- Data Collection and Evaluation
- Continuous Quality Improvement
How do we help? Programs include:
- Teaching genetics providers on how to use telegenetics;
- Making space for minority genetics providers (MGPN);
- Educating people on telegenetics (Midwest Telegenetics Patient Video Series);
- “Genetics 101” in a box for communities (genetics pop-ups)
- Helpful information sheets for emergency preparedness (toolkits and cards);
- Provide information to healthcare providers about genetics policies
Funding of NCC
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Cooperative Agreement #UH9MC30770-01-00 from 6/2017-5/2020 for $800,000 per award year.
This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.
NCC is funded from the Health Resources and Services Administration (HRSA) to the American College of Medical Genetics and Genomics (ACMG). ACMG’s mission is “to reinforce and expand ACMG’s position as the leader and prominent authority in the field of medical genetics and genomics, including clinical research, while educating the medical community on the significant role that genetics and genomics will continue to play in understanding, preventing, treating and curing disease.” Learn more about ACMG at acmg.net.